The Autism Science Foundation said the program raised concerns over privacy and confidentiality. On Friday, April 25, an HHS official told USA TODAY it is not creating such a registry.

Compiling data and creating a new registry for autism CBS News reported that the National Institutes of Health, which operates under the Department of Health and Human Services, announced earlier ...

NEW YORK (PIX11) — An autism registry will not be created, a spokesperson for the United States Department of Health and Human Services told PIX11 News in an email Thursday afternoon. Instead of ...

The Autism Science Foundation said in a statement that the limited details provided has worried families about confidentiality. "The use of registries and registry data in general can be a valuable ...

“An autism registry feels very much like being put on a ‘list’ to be tracked without our consent or permission,” says Shea Belsky, an autistic self-advocate.

The El Dorado County Sheriff's Office uses a special autism registry to help find them. So far, 65 people with the disorder are on the registry, but the Sheriff's Office wants more people to sign up.

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.

Autism Treatments: Most children with autism are on 5 or more different treatments at any given time, 67 percent of which are not covered by insurance. Parents have reported they spend an average ...

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.